 |
My boys, planning, creating and always doing something! |
I have been pretty quiet the last few days and that is due in part to having overnight guests from last Wednesday through Sunday and also from the fact that I have spent what little free time I have had trying to understand and wrap my head around the diagnosis that we finally received last week concerning my sweet, youngest son.
After his adventure in testing, a 72 hour EEG, abnormal brain wave spikes were found. This, in conjunction with previous seizures, brings the conclusion that my sweet boy has a seizure disorder. So...there is an answer, but it is an answer that brings more questions.
The Neurologist gave me lots of information to digest and told me to talk it over with DH and then we can all decide how to proceed. The Dr. was very sweet in that he understood that the information he was giving me was going to raise more questions and he assured me he would patiently answer each one. What a relief because as the week has gone on my list of questions has grown substantially.
As far as my sweet boy goes, he is feeling good. He still has some headaches but we are wondering if they are allergy related and not related to the seizures (see...we still have lots and lots of questions.) His primary Dr. put him on a 24 hour allergy medicine after our visit last week and it does seem to be making DS2 feel better.
It has been 5 weeks since the last seizure...and we are still wading through this new stream of life. There are so many questions about the present and future for my little boy. As a Mom, it scares me a lot. I am concerned for the changes this may bring for DS2. I am not sure what we are going to do as far as treatment as there are many options; some include medication, others revolve around diet and vitamins but all include a large dose of prayer. I am praying continually to keep reminding my heart (and head) that God is in control.