Saturday, February 4, 2012

The Unexpected Lesson from an EEG

This weekend finds us still on the search for answers to what is behind the seizures that DS2 has been having (to back track on this story begin here) and he is under going a 72 hour ambulatory EEG this weekend.  We went to Charleston yesterday to get it set up and attached (yes, he has to wear it until Monday afternoon...even during sleep but fortunately he doesn't have to stay in the hospital.)  He is a real trooper and hasn't complained which makes me so proud of him and his sweet spirit.

On the way home from Charleston, we stopped for some lunch. Remember, he was attached to the EEG.   It looks quite intimidating, as he has wires coming out from under his head wrap and attached to a little pack that he has strapped on.  Of course, in the restaurant it got noticed.  Not that anyone was overt but you knew they were noticing and no one was more aware of that than DS2.  By the time our food arrived I could tell his mood had become very reflective and serious.  He looked over at me with such seriousness in his beautiful green eyes and told me, "You know how when we see someone who is different, or we talk about someone who is different? Well, it changes a whole lot when you are the one who is different."  We went on to talk about how people who are dealing with illnesses, or just any physical differences must feel.  His heart opened in a way that I don't think I could have ever imagined just by his small experience of being "different."  He has always been a compasionate soul, but I could tell that his view into what others who are different must feel, was heart stretching.  He learned a lesson that no words I could have shared could ever have taught.  He saw that no matter the differences we truly are all God's creations.  My heart just melted as I listened to my 10 year old grow and mature before my very eyes. He poured out his heart concern and love for others, and I don't think I have ever been so touched and proud of him.

Who knew that an EEG could teach so much?

Blessed are those who hunger and thirst for
righteousness, for they shall be filled.
~Matthew 5:6


19 comments:

  1. This is so touching. I am so proud of your little boy too. Thanks for sharing this story. You and your family are in my prayers.
    Dolly
    Timmonsville, SC

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  2. Aww, I hope the EEG goes well. I agree that has to be a humbling experience for a kid to go into a restaurant and experience the stares that so many of us have given, even out of curiosity, and never actually had to endure. I guess it really makes you think twice about things. Hopefully the EEG gives good results and the doctors can find what's going on, too. Still thinking of you guys!

    A.L.

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  3. Hopefully the tests will give you some answers Michelle. What a wonderful lesson in compassion for everyone, it's something the boys will carry through life.

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  4. What a wonderful, special little man you have. So glad to catch up with you and praying for good results.

    (and I just sent you a very belated FB friend request- sorry!) I have not checked up on things very well lately but I'm trying to get better!

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  5. What a great story. I hope you all will get some answers. He's such a sweet and thoughtful child, well beyond his years.

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  6. What a fantastic lesson to learn! We all need that reminder in life. Here's hoping this brings some answers too!

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  7. What a sweet story. God works in mysterious ways. Praying some answers come from this test.

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  8. Made me cry... LOVELOVELOVE!

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  9. Wow, from the mouth's of our babes! Hope this will shed some light on what is going on.

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  10. Praying it all goes well.... and a great lesson, too!

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  11. Really a sweet story. Hopefully the test will give you some information that is helpful. A hard, but likely excellent lesson for your son. Sounds like he handled it with much grace and maturity.

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  12. He has such a good perspective! I hope you are able to figure out what is going on.

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  13. I know this is a challenging time for y'all, but it seems that your little man is learning important lessons along the way!

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  14. Wow, what a smart sweet boy. I will be praying for him and I hope you can find out some answers!
    ~Lisha

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  15. Such a sweet sweet boy. Who knew something so scary could turn into something so incredible. Your boy, even as he is healed, will never be the same. His compassion has blossomed.

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  16. Oh, Michelle, I am so behind & had no idea you were going through all this trauma. It sounds like you young son truly has the soul and wisdom of a much older person. If we could all follow his lead, we would have a much better world. I am praying all turns out fine.
    CAS

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  17. Oh your sweet boys. I hope the rest of the EEG went well and you will have some answers soon!

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  18. I know how he feels. I've been in that situation where everyone takes notice of you in a public setting. It truly changes your perception of others and makes you more sensitive. He already sounds like a great kid so this will only make him a greater man one day. We've been praying for him so keep us posted.

    Love,
    Gigi

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  19. I am sorry to hear that your son is having seizures and hope you get to the bottom of it really soon. He looks and sounds like a wonderful little boy. Thank you for your kind comment today on my blog -- I look forward to reading more about you! As an aside, I grew up in Atlanta, went to college in Chapel Hill, NC and spend time every summer in Hilton Head with my extended family!

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